OpenStuff, the first AI health search powered by 1.3 billion crowdsourced data points from real world patient experience RWx, is now live

A new vertical AI built on real-world patient experience, bridging the gap between medical literature and the unreliable open web

TEL AVIV, Israel, Oct. 16, 2025 (GLOBE NEWSWIRE) -- StuffThatWorks today announced the alpha launch of OpenStuff, the world’s first patient-powered AI health search. Built on 1.3 billion structured data points shared by over 3 million people living with 1,250 chronic conditions, OpenStuff transforms lived patient health experiences into real-time, actionable insights.

More than half of U.S. adults report turning to social media for health information, yet over one-third encounter high levels of misinformation. Large language models now risk amplifying this problem further, generating highly persuasive but false health content. In a landscape where patients seek immediate, relatable, and trustworthy answers, the gap between traditional medical sources and the open web has never been greater.

OpenStuff bridges that gap by providing an AI-powered health search that is grounded entirely in real-world patient experiences. Structured, transparent, and continuously updated, OpenStuff ensures insights come directly from people living with chronic conditions — not viral noise.

For the first time, anyone, not just researchers, can explore health questions powered by the voices of people who live with these medical conditions every day. OpenStuff is a unique tool for patients seeking clarity, doctors looking for actionable insights, and researchers eager to accelerate discovery.

Unlike existing medical search engines built on static literature, OpenStuff is powered by large-scale, crowdsourced data that grows, updates, and enriches itself continuously. This new data category, RWx (Real-World Experiences), captures the lived, structured experiences of millions of people managing chronic conditions. It complements traditional RWD (Real-World Data) and RWE (Real-World Evidence) by grounding insights in ongoing, patient-reported input rather than retrospective or clinician-entered records. Every new patient’s voice strengthens the dataset, keeping it fresh and representative. Beyond self-reported experiences, OpenStuff is expanding to integrate wearables, EMR data, geospatial layers, and longitudinal studies, creating a living and evolving resource.

By building the data from day one in a structured, normalized, and consistent form, OpenStuff AI goes beyond simply providing answers about experiences. It transforms natural language questions into real-time data queries and extends powerful research capabilities to everyone: patients, doctors, and researchers alike. The platform draws on more than 3 million patient voices and 1.3 billion data points across 1,250 chronic conditions, closing the biggest data gap in chronic care knowledge. By turning simple natural language questions into sets of real-time data queries, OpenStuff opens the door to research that was previously impossible, instantly, accessibly, and at scale.

“OpenStuff would not exist without the millions of people who generously shared their experiences,” said Yael Elish, founder of StuffThatWorks. “They are the heart of this platform. By combining their voices with AI, we are making knowledge that was never accessible before available to everyone: patients, doctors, and researchers alike.”

“Having early access to the StuffThatWorks platform has been transformative,” said Donna Hanson, Vice President, Strategy & Optimization at Advanced Clinical. “For the first time, we can explore the patient journey — their experiences, burdens, and unmet needs — at a scale and depth previously unattainable. The platform puts rich, actionable data directly at our fingertips, enabling us to optimize clinical trial protocols in real time and in alignment with patient expectations.

The ability to assess standardized patient data in real time is truly game-changing. The platform also allows us to engage patient communities for protocol refinement or to test recruitment and engagement materials, adding a new dimension of agility and precision to trial design.

While the industry has long aimed to make trials more patient-centric, StuffThatWorks accelerates that ambition by turning weeks or months of patient feedback into insights available in days or even minutes. It’s a meaningful step forward in making clinical research more responsive and patient-focused.”

Why It’s Different

In addition to being real data — not opinions — and entirely hallucination-free, OpenStuff delivers unique value for every audience:

For patients: Trusted answers grounded in lived experience — far beyond social-media noise.
For doctors: Real-world insight in the language of patients, structured to complement clinical evidence.
For pharma and researchers: Real-time, standardized patient data revealing unmet needs, trial barriers, and optimization opportunities — ready for action.
For patient advocacy groups: A free, invaluable source of data — complementing or replacing costly registries and empowering communities from rare to common conditions alike.

An Open Alpha, Shaped by the Community
OpenStuff is launching in alpha. The more people search, rate, and contribute, the stronger and smarter it will become. Everyone is invited to join their condition community on StuffThatWorks and take part in the ongoing crowdsourcing effort that powers OpenStuff.

About StuffThatWorks
StuffThatWorks was created by members of the Waze founding team to harness collective patient knowledge and make it universally accessible. With more than 3 million members across 1,250 condition communities and constantly growing, StuffThatWorks is pioneering a new era of patient-driven research.

With the launch of OpenStuff, this vision expands into a powerful AI-driven health search engine, built by people and for people, and designed to empower patients, inform doctors, and accelerate research.

Check out the alpha now at OpenStuff.com

Media Contacts:

Glenn Silver, FINN Partners

T: +1-973-818-8198

E: glenn.silver@finnpartners.com

Deanna Siegfried, PR Lead, StuffThatWorks

T: +972-54-457-5887

E: Deanna@StuffThatWorks.health

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